The Medical Community Is Changing the Way It Views Cerebral Palsy (themighty.com)

  • The conference is a series of courses and workshops for medical professionals to discuss the latest scientific research on the causes and effects of cerebral palsy.
  • Researchers and clinicians are beginning to view cerebral palsy from a lifespan perspective and study how people with CP progress through life physically, psychologically and socially.
  • One workshop I attended discussed how their study used the principles of participatory action research to develop the PEDI-PRO (Pediatric Evaluation of Disability Inventory — Patient-Reported Outcome), an important measurement scale used in physical and occupational therapy.
  • For example, although one of the studies found that people with cerebral palsy who also have intellectual disabilities are less likely to live independently and have strong friendships as adults than people without ID, that doesn’t mean it’s impossible for them.
  • There were multiple workshops on chronic pain; the one I attended discussed research investigating the origins of chronic pain in CP.
  • As an adult with cerebral palsy who lives with multiple forms of chronic pain, I was encouraged by how much researchers and clinicians care about addressing this issue.